(Pxhere photo)

‘There is a life to live after a diagnosis’: UBC study probes stigma of dementia

Researchers aim to identify and break down barriers that socially isolate people with dementia

Half a million Canadians are living with dementia, but many are hiding their illness from their friends and community out of fear. A new study is hoping to break through the stigma.

University of B.C. researchers Alison Phinney and Deborah O’Connor have teamed up with Jim Mann, who was diagnosed with Alzheimer’s disease 12 years ago, to spend the next four years speaking with British Columbians who are living with dementia and find out exactly what barriers exist.

Mann’s life was first touched by Alzheimer’s in the early 2000s, when his mother had dementia. He was later diagnosed with the same disease in 2007.

“When you receive a diagnosis of dementia, it is too easy to retreat and assume an inability to remain positive,” Mann said.

Since then, Mann has been an active voice in the dementia community, volunteering with the Alzheimer’s Society of B.C. and spreading awareness about memory-loss symptoms.

READ MORE: Dementia villages offer secured freedom to aging B.C. patients

READ MORE: B.C. paramedics to be trained in at-home care for seriously ill, end-of-life patients

While dementia is not a specific disease itself, it is an overall term for symptoms caused by disorders affecting the brain. There are four main kinds of dementia, but as many as 50 similar types.

Symptoms can include memory loss, difficulties with thinking or problem-solving, and misunderstanding language. Because dementia is progressive, the symptoms will gradually get worse as more brain cells become damaged.

Roughly 25,000 new cases are diagnosed every year. The Alzheimer’s society said by 2031, as many as 937,000 Canadians will be living with the illness.

The aim of the UBC-based study is to develop ways to support dementia patients in being social and active in their communities.

“There is a life to live after a diagnosis of dementia,” Mann said.

Anyone wishing to take part can contact the research team by email or call 604-551-0459.


@ashwadhwani
ashley.wadhwani@bpdigital.ca

Like us on Facebook and follow us on Twitter.

Just Posted

Cupcake Family Picnic officially launches at Honda Way in Abbotsford

Signed Vancouver Canuck Brock Boeser #6 jersey will hang in showroom until being auctioned off in March 2020

Students at old Abbotsford school trained for the war

Philip Sheffield High School had firing range in basement

Abbotsford’s Remembrance Days in 1939 and 1945 through historical archives

Abbotsford News reporting shows the anxieties of people living through conflict

Remembrance Day service at Thunderbird Memorial Square

Event in Abbotsford on Monday, Nov. 11 hosted by Royal Canadian Legion

VIDEOS: First-ever PPW champion crowned in Abbotsford

Highlights and results from Saturday’s Championship Tournament event

VIDEO: Hong Kong police shoot protester, man set on fire

It was the second protester shot since the demonstrations began in early June

Sportsnet fires Don Cherry after negative comments about immigrants

Don Cherry had said immigrants don’t wear poppies like other Canadians do

Trudeau’s new cabinet: Gender parity because it’s 2019? Or due to competence?

Prime Minister Justin Trudeau will soon appoint his new cabinet

Coquihalla drivers urged to be careful amid freezing rain alert

Special weather statement in effect for highways between Hope, Merritt, Kamloops and Kelowna

Canada among three G20 countries least likely to hit emissions targets

It says Canada, South Korea and Australia are the farthest off

Conservatives’ Scheer wants Trudeau to open Parliament Nov. 25

That’s five days after Justin Trudeau is scheduled to swear in a new cabinet

14 SeaBus cancellations, free rides for veterans from TransLink on Remembrance Day

Free rides also available for current Armed Forces members, first responders

Last remaining Centurion tank from the Korean War makes its journey ‘home’ to B.C.

Tank arrives in B.C. the day before Remembrance Day after a more than 4,500-kilometre transfer

‘Your vehicle burns a lot of fuel:’ Victoria drivers wake up to angry notes

‘This handbill was left on your vehicle because your vehicle burns a lot of fuel,’ notes read

Most Read